Di and I had planned a day of crafting at my house last Saturday. Melanoma Man and Butter were planning on camping with Scouts. Friday night the chills, fever, night sweats and cough arrived. Saturday morning Melanoma Man woke up knowing the camping would be too much. I reminded him of the Zithromax prescribed by his pulmonologist for just this type of occasion. He shot me a dirty look. Then an hour later he asked for the Zithromax, still insisting on calling pneumonia "a bad cold." He saw Dr. C just 2 weeks ago. Dr. C is another gift from Di. She recommended him, having chosen him to care for her mother some years ago. Dr. C and Melanoma Man talk about all kinds of stuff. This time they talked about grief and books. It's humanizing, having a conversation that does not strictly revolve around "the disease," whatever one's disease may be.
Saturday afternoon, with his temperature approaching 103 in spite of ibuprofen, Melanoma Man asked me to call the on call physician at Moffitt. He remembered a cautionary remark about his new drug, dabrafenib and fever. As I suspected she recommended I take him to the ED. How to choose which ED? We medical folks don't call it an ER as they do on tv. It's an ED for emergency department. Dr. C practices at the big medical center downtown, which was also my employer until recently. The cancer docs are all 4 hours away. I was still harboring a resentment against the hospital at the beach for diagnosing my Mom with the flu when she actually had a brain aneurysm almost 14 years ago. So I decided on the big medical center downtown. It can be a bleak and desperate place and it can also be the best. Last Saturday night with cancer, fever, chills, and pulse oxygen of 87-89 we were low on the totem pole. We waited 3 hours and then threw in the towel. The main concern was whether the cancer drug was causing the fever and whether it was doing other damage simultaneously. A complete blood count, blood chemistry and urinalysis might provide reassurance or indicate that it was time to stop the dabrafenib. In 3 hours he had his vital signs measured once and was then escorted to the " priority waiting room." I was not initially allowed in the priority waiting room, but after my 5th super friendly inquiry at the information desk the receptionist let me go back to the priority waiting room anyway. Melanoma Man remarked that he would be hate to be regarded as non-priority. Later at home his oxygen saturation was up, temp down and I felt ok about our decision to leave. During the night MM remarked "This must be what it feels like to be a sick old man, oh right I am a sick old man." By Monday the Zithromax seemed to be doing it's job. No fever Tuesday or Wednesday, but his oxygen saturation kept dipping into the mid 80's. As you may recall we don't have oxygen at home anymore, ever since Melanoma Man returned it. Thursday at work I received a text from MM stating simply, "cold relapse."
I arrived home 6ish to find him on the sofa reading, temperature 99, oxygen saturation 86, looking very weary, coughing, but not in respiratory distress. Sara G. Arrived 15 minutes later with dinner. She is another one of my angels.
MM went to bed @ 7:30, but called for me every 15 minutes or so. I knew he was scared, but not yet ready to admit defeat. I put the kids to bed, did dishes, got in bed myself @ 9. MM said, " we need a plan in case I have to go to the hospital. I got up and sent a text to MK, " you still up? Can I bring the kids over if MM has to go to hospital?" She said yes, as she always does. By 9:30 MM sat up in bed, with a temperature of 102, respiratory rate in he 50's and asked me to take him to the hospital. "Better yet, let's call 911. I don't think I can make it to the car." I woke the kids, called 911, drove them the 2 blocks to MK's house with pillows and blankets and what not. Back in time to meet the paramedics. We went to the hospital at the beach and they did a fabulous job, so I've decided to forgive them regarding my mother's aneurysm.
MM stayed 2 nights in the critical care unit and came home yesterday. To be continued...